Surviving ALS
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Jackie Lafayette 09/29/2008
Greene,, Maine, Androscoggin
Hi Dave! The days,weeks,months go by,and you are always with me,always.In my heart,and soul,in my mind,my dreams,with my every breath.I love,and miss you!Love,Mom!
 
Jackie Lafayette 08/31/2008
Greene, Maine, Androscoggin
Hi Dave,--- I saw a gentleman you went to school with at "American Engraving".He shared with me how he listens to all of your friends still speak of you,all of your experiences together,and how you are still very close to all of us always.It's means everything to know how you are still very much alive in our hearts/mnds.You are by all very much loved infinately!. --Love,and miss you,-Mom_
 
Erik 08/13/2008
Arlington, MA
Dave -- The 40s....ahhhh...I've just now entered them. You are very much missed, my friend. God Bless! -- E
 
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Jackie Lafayette 07/13/2008
Greene,, Maine, Androscoggin
David, Your in my heart,and my mind constantly. there are no words to describe!"Happy "41st birthday.I know you were with us at Mike& Heather's Wedding,because everything was perfect!!! Love you sweetheart! - " Mom"
 
Jackie LaFayette 05/09/2008
Greene, Maine, Androscogin
David-"You Are My "Son"shine now,and forever.All My love,Mom
 
Jen LaFayette 05/09/2008
Greene , ME, United States
My thoughts are always of you Dave and I hold you tight in my heart. I miss and love you desperately. Love, Jen
 
Jim Charest 05/07/2008
The Jungle, Maine
I was passing by the river last week, and remembered the time when you pulled that elderly gentleman from the river and saved his life. I think of you often and will be seeing you in a couple of weeks on the island. I believe that you would be very impressed with the new "Dave Memorial Cup" fishing trophy.....shot glass included. Miss you, Jim
 
Jackie Lafayette 04/21/2008
Greene, Maine, Androscogin
David's 1st Memorial on "May 9th 2008". Let us all who knew and loved "David" light a candle in his loving Memory.
 
Andréa MATTHIJS 02/25/2008
Meerbeek, BELGIUM
It is a great website and I loved reading about the struggle for diagnose and help. The journal stopped at March 2007 and I had hoped to read more about David. Hope all is weell, Andréa
 
Laurie Oringer (Bourgoin) 01/03/2008
Weymouth, Mass, USA
Hi Jen & Mike. I just wanted to let you know that my son 's in high school now and he has just completed his health project which was to be done on any disease. He wished to do his on ALS. Besides Dave's story, we also lost our dear neighbor to ALS. He was only 43yr married with two boys. We were fortunate enought o be able to assit his family in differnet ways from begining to end. Having this web-site has given my son the knowledge necessary to better understand this horrible disease, the causes and effect also. Dave put up a very brave battle. He will always be remebered. Wishing you a Safe & Happy New year Friends' of Dave Laurie & Nichole Bourgoin
 
Michael 12/30/2007
Newton, MA, USA
Dave, spent Christmas with Heather and her family this year in Marblehead. We flew to Tuscon, AZ with the goal of spending a few days warming up from this frigid northeast winter and wouldn’t you know it was just as cold there. Heather and I hiked two mountains to stay warm. It looked just like when we went through the desert in 1982 with dad – miss you.
 
Michael 11/29/2007
Newton, MA, USA
Dave, our cousins in Wellesley created a Memorial Football game for you. It is called the Annaul David LaFayette Invitational Football Championships. The format is; Fran sends out an Official Invitational Entry Form (OIEF) to friends and family and Louise as usual feeds us all and Robert brings the beer. Fran lined the field complete with endzone markers and Imade a first down chain and down marker. We fielded four teams and played a round robin – two games for each team. My team won the Championship and our Jerseys were the grey promo shirts you created a few years ago as promo items. We raised some money too – donating it to maintain the site – miss you.
 
Michael 10/30/2007
Newton, MA, USA
Dave, we are having the Halloween Harvest Fest this year and it will be our 17th. I finished the house this year and created a state park like back yard in the woods and buikt a huge three pit fireplace just like you’d want when you visit. Happy Halloween, and guess what? The Red Sox won the World Series again! Heather and I also got engaged this summer so we are planning to get married next June – miss you.
 
Jeni LaFayette 08/19/2007
Greene, Maine , U.S.
Love and miss you desperately. Always thinking of you. Love - Jeni
 
Erik 08/18/2007
Arlington, MA, USA
Dave -- Been thinking about you and your family. Mike and I had a great scuba dive a couple weeks ago, and I know he's thinking about you. We're thinking about a Halloween Harvestfest in Newton this fall. I'll never forget your getup back in 2005!
 
Linda/Curt Rucker(cousins) 07/29/2007
Dave,and Jen, I have written a poem for you,and it goes like this. "In Life" There is the birth of a soul that emerges into all eternity. It begins with a simple grasp of a tiny hand,and it is "Marked" as the begining. "In Life" there will be scraped knees,big smiles,the first kiss,apologies,and many joyous events,and it is "Marked" as growing. "In Life" there is a "Special Someone",a kind wind,big yards,barbrcues,a wedding,dinner with friends,good wine,butterflies,and it is "Marked" as happiness. "In LIfe" there are hand shakes,a fierce storm, hugs,a shoulder to cry on,and the ever demanding question? why?,and it is "Marked" sadness. "In Life,there are angels.They carry you in all of lifes happenings.They may be your friend,a neibor on the street,and it is "Marked as comfort. "In Life" there is death.No decisions on when,how,or why? It comes to all of us,the rich,poor,good,bad people,and it is Marked"as "Life"
 
Phyllis Morrissey 07/29/2007
David, the last three years are like a blur,it,s your anniversary weekend and our thoughts are with you and Jen,as we remember your beautiful Wedding day who would of guessed what the future would hold!!!!!!We wsnt you to know that our thoughts and Prayers are with you daily.As we look over the camness of the lake and the hazy blue skies,we see in our minds your beautiful smile and know its ok,that we,ll see you when we too, begin our journey on the other side!! We love and miss you and know your energy goes on and on and your safe without the pain suffering of the world.Sincerly,Uncle Jack & Aunt Phyllis
 
Jeni 07/28/2007
I love you, David. Happy 6th anniversary. My thoughts and love are with you. --Your Jen
 
Curtis & Linda Rucker 07/28/2007
Las Vegas, NV, Clark
Jen, I know this is a hard day for you, I also know that David is with you all the time, and will carry you. I remember your wedding day, life was just perfect for the both of you, as all weddings should be. Unfortunately we never know what life brings us. If we did we sure could fix things for everyone. You are a wonderful person who took great care of David for so long. You are very blessed, and loved by many people as David was. You are always in our thoughts and prayers. Love, Linda and Curtis
 
Linda 07/28/2007
Jackie is one of my dearest friends and has asked me to write something for David and Jen in remembering their anniversary.This poem was given to me when my son, Brent, passed. "SAFELY HOME I am home in Heaven, Dearones: Oh, so happy and so bright! There is perfect joy and beauty in this everlasting light. All the pain and grief is over. Every restless tossing passed, I am now at peace forever, safely home in Heaven at last."
 
Gail 07/28/2007
Auburn,, Maine
Dear Jen, Six years ago today, you and David took your marriage vows. You both chose to honor and cherish eacher in sickness and in health, which you both fulfilled to the fullest of your love for one and other. I remember your wedding vividly. *S* The sun was shining brightly, there was a slight breeze in the air. You both were surrounded with happiness from all your friends and relatives. The day was perfect to celebrate your love for one and other. Jen, David is not far. The brightness of the sun is his beautful smile. The warmth from the sun is his love for you. When there's a breeze, or a slight wind, David is the whipser in the wind. If you listen carefully Jen, you may hear him whispering to you. On this precious day, my thoughts are with you Jen.
 
Paul & Anita 07/28/2007
You might have had a short life here on earth, but the memories my family and I have will last forever.
 
Jackie Lafayette 07/28/2007
Greene,, Maine, Androscoggin
David,and Jen! "Happy 6th Anniversary"!!! All My Love, Mom xo
 
Catherine 07/13/2007
Happy 40th birthday Dave. Miss you!!
 
Jennifer LaFayette 07/02/2007
Greene , Maine , United States
I just wanted to let everyone know that I still think of all of you who have supported Dave, my children and myself through this difficult time. I also made a journal entry that has not been entered onto the website as of yet. I wrote it the night I buried David. If you are interested you can email me at my personal email address: jenlaffy@yahoo.com. Thank you once again. Always --Jen
 
Steve Davis 06/16/2007
Marion, Iowa, USA
It is sad to rea you notes, because I am going through the same feelings. Not being able to talk & do the things you took for granted really hurt. I would love to hear about what you are taking & if you feel that it has helped. What you have done here is truly amazing. Keep up the good work. Steve
 
Sally Ann 06/15/2007
Greene
Jen, Children, Jackie, Gillian and Dave's brother ---- Words cannot express what you have gone thru --- Dave was a special person -- For him and his brother to put this website toghter and his brother to keep it going --- Thanks Jackie for telling me about it still being up and I just had to come on and write -- Remember all the memories --- being a neighbor I would always think and pray for the family --- What strength and courage everyone had thru this ordeal --- I will always remember Dave's smile, him and my Dad talking - which I am sure they are doing now in the higher power. But especially this last christmas season when I saw him and Jen at home depot when they stopped and visited me --- concerned that it was my house that burnt but one of the other neighbors - even with what was going on in their lives --- they was always thinking of others --- It has made an impact on my life -- again thanks for this wonderful web site -- take care everyone and I pray and think of you often -- Sally Ann
 
Dan LaFayette 06/07/2007
Charlotte, NC
Dave, We held our Walk to D'Feet ALS a few weeks ago in Charlotte. It was so hard writing your name onto the sticker that said "In memory of..." rather than the sticker that said "In support of...". I was wearing my survivingals.com t-shirt and wristband and thinking of you...
 
Jeni LaFayette 06/05/2007
Greene, Maine
I really do not like using the guest book to get my thoughts out or to let people know what I have been feeling; however, right at this time my journal is not up and running. Yet, I feel as if this is very important and it should have been placed right away on the site. I wrote this May 14, 2007, the night I buried my husband. May 14, 2007 I am sitting here tonight, wondering what my next step should be. As you all know Dave is now with a higher power. Dave and I have had many conversations about what possibly can happen when we cross over. I always joked with Dave and said
 
Michelle (LePage) Mikolajczyk 05/29/2007
Burlington, VT
"...when he shall die, take him and cut him out in little stars, and he will make the face of heaven so fine that all the world will be in love with night..." Romeo & Juliet, Act III, Scene II So sorry for you loss. As someone mentioned in a previous posting, if love could've cured Dave, he would've lived forever. His smile will always shine brightly...
 
Robert Seiler 05/23/2007
Austin, Texas, USA
Susan Lafatette-Dunlap is one of our dear friends. Our hearts' go out to all persons and family sufffering from ALS.
 
Mark Cunningham 05/21/2007
Watertown, MA
I'm very sorry to hear about your loss. My thoughts and prayers are with you.
 
Tina 05/21/2007
Greene, maine, usa
Dear Dave, I have refrained from writing on this web site as I felt that we said everything we needed to say to each other, as we needed to say it during your IV therapy and our visits together as friends. Now that you are in a different place and I cannot talk with your physical body I find that there are things that I must tell you and to those who frequent this web site that must not go unsaid/unwritten. In my line of work I am a promoter of choice and source of information for many patients. This is what I do and do best and feel proud to be able to give patients choices in life to do things their own way. Even though at times as a nurse I am thinking in my head and may even say, this may not be the best of your choices but it is ultimately your choice until you are no longer to make those choices for yourself, and I will support you in your choices without judgment. For all that know you we know that you stuck to your guns and made every choice as you felt it should be along the way. At times I was like a dog with a bone about that feeding tube, bringing over all the literature I could find so that I felt you were making an informed choice not to have one placed. My function as a nurse and more importantly a friend was to inform you and support you in the path that you chose. At times this was extremely difficult. Some of you may be thinking, “What does she know?” I only came into this friendship with Dave through marriage; to some this does not mean much, and you may think that I truly did not know him. But regardless of how I or any of you knew Dave, through marriage to one of his closest friends, through working with him, through school, parties or whatever. We all knew him in a special way, you were a very special person Dave. My best friend Sarah reminded me yesterday that when Emma was little there were only two people outside of the family that she could totally be free, talkative and playful with one was herself and the other was you Dave. You will hold a special place in my children’s lives forever. I need you to know that I am proud of you for sticking to your guns and living your life your way till the very end. I cannot express in words what I feel regarding your passing. I can tell you that I am so thankful to have been there, during your passage to your next journey. I am glad that I was able to support you and Jen, as well as your family that was there that evening, through this process. As Jen so simply put the night of your passing “I can honestly say there are no regrets, there are no I should have’s, I would have’s, I could have’s, we did and said everything to each other that needed to be said and done.” I am thankful that I can say that with confidence as well. I will miss you. I will miss your continual smile and laughter and what joy it brought to my children, Norm, and myself. Love Tina
 
Brian Epstein 05/18/2007
Arlington, MA, USA
Deepest condolences on the passing of your brother; my family and I wish you all the best.
 
Jackie LaFayette 05/17/2007
Greene,, Maine, Androscoggin
continued- "Mom",No Way!" I am me!.---That did stop,we did agree---------We experience much through the years.Both laughter,and some tears.--------You filled my heart with so much pride,You gave me joy,fulfilled my person,-----"My Son's,-"My Boys's!---------Your Dad with a smile,and opened arms,----he di await,to welcome you through the pearly gates!.-----------So smile your smile,and twinkle "Twinkles",my little star!-------Michael,and I know exactly where you are!----With All My Love,Hugs,and kisses, -------Your Mom
 
Jackie LaFayette 05/17/2007
Greene,, Maine, Androscoggin
A Tribute To My Dearest,Dearest Son's: I have one son,I have two.I gave birth to Michael,then came you. The two of you conceaved in so much love.---Now David your with your Dad in heaven up above. The years came,the years flew,and so my baby boys you grew. ------I dressed you alike for awhile,until one day when one of you smiled,----and said,
 
Brian Knox 05/15/2007
Plainville, MA, USA
I met Dave at the Halloween Harvest Fest this past fall when I traveled up to Maine with his brother Michael. I saw a tremendous support network of Dave's family and friends. Even though I only met Dave for the first time that night, I could see that he had an influence on many people. It was a rainy, windy night but the hall was packed. My thoughts and prayers are with Dave's family. His family and friends are among the best.
 
Erik Linnane 05/15/2007
Arlington, MA, USA
Dave -- You never gave up. I'm proud to be your friend. My family is thinking of you and we send you and yours all our love.
 
Anna 05/15/2007
Xenia, Ohio, United States
I never knew Dave or any of you for that matter but I got on this site and I feel I know you through Dave's journal.I just recently lost my father in law and I know he, just like Dave is in a far better place then us.I will be praying for you all.Sorry for your loss, Anna
 
Jodi Wormald(Gauthier) 05/15/2007
Salisbury, NH
To Dave's wife,family,Norm,Jim and Matt,my deepest sympathy and my prayers are with you. Dear Dave, I learned about your website Sunday at your beautiful celebration. I had heard you were ill, though I had no idea of your fight. I wish I'd known more-but you know that, and there is much to say, but you already know that too. My heart is heavy as I look at pictures of your incredible life. And the pictures of you smiling. You always smiled with your whole heart. I am so sorry for what you and your loved ones endured. Mostly I knew you that one summer when I was 15, but so much fun and so many memories are packed into that summer. All the concerts we went to,all the music we listened to. Oh man how we laughed and oh how we partied! And the brown Nova, that didn't even need a key to stay running. Your idea to drive Jeff's vw on the track at my house. All the fun, all the adventure, and most of all the friendship shared. Thank you Dave! I am thinking of you and will be. I love you Dave. Jodi Gauthier (Wormald nowadays)
 
Gail Estes 05/15/2007
Auburn, Maine
David, your long courageous battle is over. If love could have saved you, you would have lived on earth till the end of time. Your beautiful, magical smile will forever stay in my heart. It's a mystery as to what happens once we pass. I would like to believe since your journey on earth is over, you've moved on to your next journey, where ever that may be. The very first time I had a jello shot was with you, a few years back at Aunt Phyllis's. I remember looking at it, and asked "how do you do this?" Once I got the drift it, I still had a hard time getting the whole thing down at once.. The next time I had a jello shot, was at your party, celebrating your life. As we toasted to you, I smiled, feeling you were with us in spirit. When it's my turn to pass, I hope you'll greet me with jello shots. As strong as my faith is, believing we'll meet again, doesn't stop the sadness I feel. "To Jen, my sister Jackie, and Michael," David couldn't have had a better wife, mother, and brother. The three of you stood by David, loved him unconditionally. You were by his side when he needed courage, you respected and honored his every wish." It can't get any better than that in my eyes.
 
Joan Goulette 05/15/2007
Turner, ME, USA
So sad to hear about David's struggle and death. He's to be commended for his this website. I'm sure it will help others with their struggle.
 
Heather Cairns 05/14/2007
Portsmouth, NH, United States
David, somehow in your pain, you managed to set an example for what can be good and noble in a human being. You used your tragedy to help others. If that isn't the definiation of hero, I don't know what is. You are the most courageous person I've met and it was an honor to know you.
 
Nettie Aspinall Bean 05/14/2007
Brunswick, Maine, USA
Jenny, I knew Dave years ago, I am so saddened by your loss. I had no idea that Dave was so ill, and I also had no idea that the two of you were married! He was a great guy and I'm so happy that you found happiness with him. I hope that you and your family are doing well, I know that you have a very strong support system and I'm thinking of you during this very difficult time. Take care-Nettie Aspinall Bean
 
christopher goulette 05/14/2007
east hampstead, new hampshire, usa
Just got back from Greene. I had the greatest time at Dave's house. Sorry, I missed your tough years Dave. I'll always love and miss you!!!!!!!!!!!!
 
Jill Grant 05/14/2007
Portland , Maine, USA
Dave- I am so thankful to have met you. You have taught me to enjoy each and every day. Thank you for that important lesson...and all the smiles. I will always remember you.
 
Anthony DiMeo 05/14/2007
stow, ma, USA
Michael- Please accept my deepest condolences for the loss of your brother. My thoughts are with you and your family during this time. Take care. Anthony
 
Roberta Bouvier 05/14/2007
Marlborough, MA, USA
Mike, There are no words that will take away the pain. Just know that your brother is in a better place with no more suffering. I am thinking about you and his family and praying for all of you. Roberta
 
Kathleen Mendes Dudzic 05/13/2007
West Bath, Maine, US
Jenny, I just heard about your loss. I did not know Dave, your husband, but I have learned alot about him. You are an endearing, sweet person who I'm sure shared life with another incredible person, and I am so sorry for your sorrow and that of your family and your husband's family. Although it has been many, many years, my thoughts are with you. Your old friend, Kathleen (Mendes) Dudzic
 
Chris Orestis 05/13/2007
Falmouth, ME
I just came back from the Memorial service at Dave and Jen's home. It was as Dave wanted-- all his family and friends gathered together with beers and barbeque to celebrate his life. The Bad Dog crew was in full force and those things that made growing up in Lewiston so great. were on full display. Some Bad Dogs could not be there today but they were there--as Dave always will be. We will be on the island for Memorial Day weekend just like we have ever year for more than two decades-- and you better believe the jello shots and Yaeger will be on ice. See you there Dave, we will keep your seat waiting for you by the fire.
 
Andy Holman 05/12/2007
Melbourne, AUSTRALIA
Dave, I will miss you so much more than words can describe. Thanks for the great memories that you have given to us all. Your life, your fight and of course that infectious smile have made such a big difference for so many. I am so sorry that I can only be there in thoughts and prayers. Andy
 
ROLANDE POMERLEAU 05/12/2007
VERO BEACH, FL, INDIAN RIVER
I SIT HERE AT MY COMPUTER WITH A BIG LUMP IN MY THROAT AND WATERY EYES IN DISBELIEF. I WORKED WITH HIS FATHER, MARC LAFAYETTE, AND HIS GRANDFATHER,ROBERT LAFAYETTE. I GOT TO KNOW DAVID WHEN HE WOULD DROP INTO THE OFFICE FOR VISITS WITH HIS DAD. BOTH. DAVID AND MIKE WHERE NICE BOYS THEN FINE YOUNG MEN. YOUR FATHER, MARC, WAS VERY PROUD OF YOU BOTH. I NEVER KNEW ABOUT YOUR DIABILATING DISEASE. I STILL HAVEN'T PUT FINAL CLOSURE ON YOUR DAD'S DEATH. WE RETIRED IN FLORIDA AND DID NOT ATTEND THE WAKE OR FUNERAL. SEEING YOUR OBITUARY IN THIS MORNING'S PAPER AS LEFT ME DEEPLY SADDEN. MY DEEPEST SYMPATHY TO YOUR WIFE AND CHILDREN. I EXTEND MY SYMPATHY AND PRAYERS TO YOUR MOM, JACKIE, HIS BROTHER,MIKE, HIS STEPMOTHER, GILL. GOD BLESS YOU ALL.
 
Jane Woodhead Jawor 05/12/2007
Lewiston, Maine, usa
I was so saddened to hear of Dave's passing. My own father died of ALS 3 months ago after a one year batlle, until succumbing peacefully in the home which he built. Although I never met Dave, my brother did at the ALS support groups and he was well known in the ALS community for his determination and fighting spirit. We are down a Hero. And it is hard to make sense of why such cruel and horrible things happen to such great people. My prayers are with the LaFayette family
 
Ida M Real 05/12/2007
Lewiston, Me, anndroscoggin
My sincere condolences to the family . I Just read Davids obituary in the paper. I too am recently diagnosed with Als . My nerons are just starting to brake away. My dad had it and pasted 12 yrs ago. I will keep the family in prayer for courage and strenghth at this time and may your hearts be healed from the pain of the lost of such a couragous father ,friend, and husband. May God Bless you and Keep you safe. Ida
 
Evan Paione 05/12/2007
Durham, Maine
I am sorry to hear about Dave. I am an old friend from Jr High. My thoughts and prayers are with his Family. God Bless!
 
Taylor Jalbert 05/12/2007
Greene
My family and i are sorry for your loss. I am glad that my school got the chance to raise money for ALS. And to Madison I hope you feel better and come back to school soon.
 
Cortney Ridley 05/12/2007
Sabattus, Maine, USA
Jen and family, I am so sorry to hear about Dave. He was such an inspiration to all and will be missed so sadly. My love and prayers are with you.
 
Fullerton Family 05/12/2007
Greene, Maine, USA
To: Jennifer and Family So sorry for your loss and just wanted to let you know that your family is in our prayers. God Bless!!
 
Michelle Gravel 05/11/2007
Lewiston, Maine
I am so sorry for your loss...Dave was a wonderful person that I had the pleasure of knowing since high school. It always amazed me at how positive he was every time I saw him, even though his condition was worsening. He made people see life in a different way. He will certainly be missed.
 
Rick Burke 05/11/2007
Waltham, MA, US
Mike, I am very sorry to hear about your loss. Thoughts and prayers.
 
Richard Serafini 05/11/2007
Maynard, MA, USA
Michael, I am very sorry to hear about your loss. Our thoughts and prayers are with you, David and his family. Sincerely, Rich Serafini
 
Linda Hayes 05/11/2007
Auburn, maine
I am so sorry to hear the news. I had the pleasure of meeting David at the Colisee during a fund raiser. David has been in my thoughts and prayers ever since , his strength and attitude amazed me. My thoughts and prayers will remain with the his wonderful family.
 
Debra Morin Ouellette 05/11/2007
Poland Spring, Maine
To all family and friends of Dave, our heartfelt sympathy goes out to you. Dave was so fortunate to have the strength and compassion of so many people around him during his difficult journey for the last two years. Through many people, I have had the opportunity to hear of Dave's courage and endurance. Our thoughts and prayers are with all of you as you continue to stay strong during this emotional time. The website, get togethers, campground etc. are a beautiful testament of your longing to keep Dave close to you in heart and memory. May the fond memories of this beautiful person give you the strength to find peace and move on. Clearly, Dave will never be forgotten. With sympathy, Debra Morin Ouellette, Dan Ouellette and our family.
 
Susan Richardson 05/11/2007
Portland, OR, USA
Michael, I am so sorry for your loss. My thoughts and prayers are with you and your family. God bless.
 
Marie Carlson 05/11/2007
Mike, I am so sorry for your loss. My thoughts and prayers are with you and your family during this difficult time. Fondly, Marie Carlson Monster
 
Stan Dingmon 05/11/2007
Framingham, MA
Michael - I am so sorry to hear of your loss. Your family is in my thoughts and prayers. God bless you all!
 
Esther Fancher 05/11/2007
Indianapolis, IN
To David's family: I am deeply sorry for your loss. David's memory will live on through this website and the people whose lives he touched. Sincerely, Esther Fancher
 
Steve Orestis 05/11/2007
Oslo, Norway
I love you Dave.
 
Tim Robbins 05/11/2007
Holland, PA, Bucks County
I'm so sorry to hear of the loss of David. Be strong and may god bless all of you. Peace, Tim Robbins & Family
 
Bob Bayless 05/10/2007
Marlboro, MA, USA
Michael and Family: Lynn and I send you our deepest sympathies for your loss. Reading David's last journal entry reminded me of how many things we take for granted every day... Our health, simple pleasures and the richness of life itself. You have done such a great job getting the message out with this website. I hope it is comforting to know that you are helping people that have gone through the same trials that you have. It is evident in his words how very proud David was.
 
Kati Kerksieck Smith 05/10/2007
Almyra, Arkansas
To the family of David. You have my heartfelt condolences for your loss. Bitsy and Dan have spoken so caringly about your David and informed me today his battle was over. Having lost a sister at an early age, I know there are no real words to explain or express the sorrow. He must have been a wonderful young man to have so many sign in with such warm thoughts. Bitsy's Mom.
 
Bob Klapman 05/10/2007
Maynard, Massachusetts, USA
Hi Michael, I just heard about your brother & I wanted to pass along my condolences. My thoughts are with you & your family. Bob
 
Steven Malcolm 05/10/2007
Maynard, MA, USA
Michael and Family, I am greatly sorry for your loss. What an amazing website you have created here to teach people about ALS. Keep up the great work with promoting this to others, it is wonderful! Steven Malcolm
 
Ben Woodford 05/10/2007
South Boston, MA, USA
Mike, So sorry to hear about your family's loss. Dana and I have you and your family in our thoughts. Regards, Ben
 
Trish Robertson 05/10/2007
Boston, MA
Michael, I am so very sorry for your loss. You and your family are in my thoughts and prayers. Please accept my sincerest sympathies.
 
Kim Zimmer 05/10/2007
Indianapolis, IN
Michael, I am so sorry to hear of your loss. You and your family are in my thoughts and prayers. Kim
 
Jeff Auger 05/10/2007
Michael, Sorry to hear about your loss.
 
Robert Waring 05/10/2007
Dallas, TX, USA
Michael, With deepest sympathy, I extend you and your family my prayers and best wishes for strength and hope during this most difficult time... and beyond. Your quest for awareness, understanding, and a cure for this terrible disease is no less than remarkable. Robert
 
Deborah Urciuoli 05/10/2007
Deepest sympathies to your family in this time of sadness.. Deborah
 
Casey Renick 05/10/2007
Indianapolis, IN
Michael, I am so sorry to hear of your loss. You and your family are in my thoughts and prayers.
 
Chris Shaw 05/10/2007
Charlton, MA
I would like to extend my deepest sympathies for your loss. You are in my thoughts and prayers.
 
John Hennessy 05/10/2007
Holliston, MA, USA
This message is to express my deepest sympathy to Mike and the family and hope that Mike and David's work makes a difference in the fight against ALS.
 
Kevin Blier 05/10/2007
Brandon, VT
To Jenn, his brother Mike, and Dave's other immediate family and many close friends, words are hard to come by on a day like today. Even for the most expected of losses, Dave's insistence on surviving made us all want to believe the impossible could be true. Today is a day of sadness and disappointment. Sadness for the loss of our friend and a sense of remorse and disappointment for Dave that although he probably knew deep down he would not survive, he tried hard to make himself and the rest of us believe he would. His battle, his will to live despite steep odds, at least for me, was not a "fools errand", but a statement of courage and heroism that will not soon be forgotten, at least for me. I, like probably so many others, wish they could have done more than accept this fate, but at the very least, we know Dave's suffering has ended. As time goes, so will the sense of grief and loss. From Kevin, Kristin, Aidan, & Collin Blier, we send our deepest sympathies to all who grieve along with us and our thoughts and prayers are with those who are his closest loved ones. God Bless
 
Matt Varakis 05/10/2007
Clinton , MA, USA
Michael, I am very sorry to hear about your loss. I will keep you and your family in my thoughts and prayers. Please accept my sincere condolences.
 
Stan Hill 05/10/2007
Turner, Me
Jen & Family , I left you a message on your own email also. I am so sorry. It doesn't seem possible after seeing Dave last Friday. Call me for anything. I am going to miss him a lot. Stan
 
Jeff Chicoine 05/10/2007
Lewiston, Maine
I would like to express my sincere condolences to the LaFayette family. Your perseverance throughout this ordeal is truly admirable. Dave's strength and courage never wavered with your support. I had the honor of visiting Dave just two days ago and as anyone would guess, he was able to generate big smiles. Those muscles never faltered. There were many visitors there which is so indicative of Dave. He brought so many different circles of friends together. It goes without saying that Norm and Tina Martineau were there also. Their unbelieveable support is beyond any that could be expected by even the closest of family. Thanks you guys!
 
Jeff Fleischman 05/10/2007
hopkinton, ma, US
I work with David's brother Mike at Monster.com. I wanted to express my sincerest condolences to David's family in this difficult time. I did not know David but based on what I know from Mike he touched many lives and despite this terrible disease he fought it till the end. He bravely made his situation known to advance the cause of research and awareness so that others may benefit. There can be no greater testament to the character and courage he demonstrated during this time.
 
Susan Gonyea 05/10/2007
Clinton, MA, USA
I am so sorry for your loss. Please know my thoughts and prayers are with you and your family at this time of sorrow. I work with Mike and I know how hard he worked on this site and for his brother. I am sure Dave is resting in peace now with no pain. Remember he will always be with you and your family I truely believe that. Susan
 
Manjari 05/10/2007
Waltham, MA, USA
Michael, there are no words that will take away the pain, so just know that we are here for you. Let me know how I can help. – M.
 
Danielle Eber 05/10/2007
Stoughton, MA, USA
I am very sorry to hear of your loss. May peace be with your family at this time. My thoughts and prayers go out to all of you.
 
Deb Squires 05/10/2007
Maynard, MA
Michael, I'm so sorry for your loss. My condolences to you and your family. -Deb
 
Kris and Paul Albert 05/10/2007
Greene, Maine
Jenn and Family: We are so sorry to hear of your loss. If there is anything we can do for you and your family, please let us know. If you need anything for Madison, again, let us know. Our thoughts and prayers are with you. Love, Kris, Paul, Matthew and Timmy
 
Dale Cailler 05/10/2007
Maynard , MA
Michael, Our thoughts and prayers are with you and your family.
 
Graeme Noseworthy 05/10/2007
Maynard, Massachusetts, United States
Michael, I would like to extend my sincere condolences for your loss. I know this will be a difficult time for you and your family. I will keep you in my thoughts and prayers. -Graeme
 
Kathy and Bill Linnane 05/05/2007
Boxborough, MA, USA
Hi Dave -- We think of you often, and wish you well. Erik was wearing your survivingals.com T-shirt today, so I thought we'd send you a message. Happy Spring! Say hi to Mike for us. Fondly, Bill and Kathy Linnane p.s. we're grandparents now -- Erik's brother Christopher and his wife Jacki had a little girl named Adeline. Take Care!
 
Stephanie Dumont 05/04/2007
Greene, ME, usa
Hi Dave and Jen, Thought that I would say hi and let you know that I think of you often. If visits are welcome, I would like to stop by again sometime. Who would have thought after all these years our kids would be such good friends? Best wishes and call anytime, Brittany has our number! Steph
 
Stephanie Daugherty 05/01/2007
south bend, IN, USA
Dave, I wrote to you for the first time on Sunday 4/29/07. My Mother was diagnoised in January. We have begin the detox plan outlined in the book "Eric is Winning." Eric Edney is the author, and practices all organic, no meat, and a super strict regimen of supplements. I came across his book on the internet. There's also several pages of updates on the internet since the publishing of the book. His plan is spelled out in the book, but modifications were made later. I really encourage you to check out the updates online. Hang in there, Stephanie
 
Stephanie Daugherty 04/29/2007
South Bend , IN, USA
My Mother was diagnosed with ALS in January. We're curious about your cocktail. We've started a detox program in April, which includes all organic foods, supplements, and protein shakes. We are looking for the magic bullet!! Thank you, Stephanie
 
ERIK 04/21/2007
Boston, MA
Dave -- Hope you are well. The entire staff and faculty of BU School of Management had an open house today. We want to wish you the best and support you in your struggle. Stay well! - Erik
 
Erik 04/14/2007
Arlington, MA
Dave!!!! Hope you are well. My family and friends are thinking about you. - E-Man
 
Steve Holifield 04/12/2007
Apple Valley , ca, usa
Hi Dave - We have a lot in common. I'm 39 years old, with a wonderful family, fantastic friends, a drive for life, but this awful disease. I just wanted to say that you are an inspiration to me. Thank you for sharing your fight against ALS.
 
Brandy 04/10/2007
dresden, Maine, USA
Your in my thoughts and pray. You and Jen both. Words can never say how you have touched me just knowing about your story. Very so much love Brandy and Baby Vanessa-Lynn
 
Steve Lavallee 04/07/2007
Lewiston, Maine, US
Dave, I wanted to drop you a line and tell you that I will be thinking of you this Easter. I just got back from watching a Mainiacs game tonight with Bart. They won 4-1 tonight! It was a good game for them, I wish you could have made it. Steve Lavallee
 
mclaughlin family 04/02/2007
new windsor, New York, U.S.
My Husband is in the process of testing for als, the verdict so far is a rapid progression familial type. But as you know they need the facts (mri, emgs nc labs) his Father grandfather and an aunt all passed away from als but it had started in the lower limbs but luck of the Michael, Right arm not usable and right upper back has atrophy left arm beginning, and it's only been since dec. that the first simple signs were there. I'm sorry just venting this is the first week I've let it hit me our children don't know yet ( 8 and 10) . Good Luck with your fight and if you've got any happy thoughts for us let me know
 
Kim Kruczek 04/02/2007
Lombard, IL, USA
Hi Dave, Just wanted to let you know that I stopped by your site. I think of you and Jen often. I am at school out in Chicago and it is people like you that remind me why I am choosing a career in medicine. Take care and best wishes, Kim Kruczek
 
rachel pelletier 03/17/2007
auburn, maine , us
hello David, I heard about your diagnosis some time ago and have been praying for you regularly. You do not deserve this and it just doesn't seem fair. I have always considered you a very good friend and you made it a real joy to go to work every day and work with you. let me know if there is anything i can do for you. rachel
 
Kim 02/11/2007
Goulds, NL, Canada
 
Kim 02/11/2007
Goulds, NL, Canada
Hi David, First I would like to say my thoughts are with you. I am on the net looking up information for my father in law Dave Mac Roberts who has ALS now since April of 2006. He is very strong but also confused and down at times. I hate seeing him like this and everyday he trys different things to keep going. He is now being spoon feed and his in a state of hurt for having this diesease. It would be great if you could send him some information about Als and your life with ALS to help him through each day. I thank you so much if you could e-mail me back and let me know you received this. His name is Dave Mac Roberts Address: 5a Keith Drive Goulds, NL A1S 1B1 Again Thank you very much.
 
Patty S. 02/06/2007
Auburn, ME, USA
Dear David, this is Patty from therapy. You are spoken of often and fondly. We often wonder how you are doing and continually wish you the best.
 
Erik 02/02/2007
Arlington, MA
Dave!!!! Sorry I missed the HarvestFest this year. Heard it was a great success! I hope you are doing well and wish you the best! - E
 
Stephanie Smith 01/15/2007
Roodepoort, Gauteng, South Africa
Hi, I have briefly reviewed the website, looking for more information on ALS and was quite taken with the fact that Davids diagnosis (April 05) was the same month and year as my dads. Unfortunately he (my dad) has not really made much effort to find out more about ALS, the effects thereof, or do any future planning. Considering that it is almost two years since his diagnosis i am finding it more and more frustrating as i realize that neither my mom or dad have particularly concerned themselves with the future other than harping on the fact that my father has been diagnosed with ALS. However the point of my "signing" the guest book was just to say that i admire you for having the courage to write your journal and will certainly be visiting your website on a regular basis!!!!!!!!!! Regards Stephanie
 
linda 01/08/2007
I have been watching for new updates on this site, but have not seen anything in several months .I don't know if it is a good thing to hear nothing or a bad thing But I t wanted to let you know you are always in my thoughts and prayers.
 
trisha 11/24/2006
auburn, me, usa
i wish you the very best of luck and know that there are people to lean on for help
 
Kasey 11/15/2006
Attleboro , MA
Dave....we have never met but I have heard from Lori, a dear friend of mine and your sister in law, what a strong, loving person you are. My thoughts and prayers are with you and your family through your daily struggles. May you continue to find the strength that you need to get through these tough and very trying times. God bless.
 
jane wilson 11/14/2006
vassalboro, me, usa
I only knew Kevin wilson , briefly throughout his short life and I,am truly sorry . He had so many things going for him .i know god has accepted him in heaven . God bless his parents and all of his family and all his great friends he left behind. My heart goes out to everyone who loved him so much. may god be with him allways sincerely , jane wilson
 
Bonnie Hill 10/22/2006
Sabattus, Maine, USA
We kind of met one day when my son was having PT, and you stopped to talk to the therapist. I think of you often and wonder how you are. My oldest son is thirty eight, and my youngest son is twenty one. He has had life long disabilities. and now has a deteriorating spinal cord. We are not sure of his outcome. I care for him 24/7. My heart goes out to you, your wife and children. It's a challenge to to have carefree days. Kindest Regards, Bonnie
 
Michelle (LePage) Mikolajczyk 10/09/2006
Burlington, VT
Recently, I met up with my old pal (and yours), Jim Couture and his fabulous wife, Rebecca, while they were visiting Vermont. I asked about you and he told me about this website and about how he and some other friends had just finished up doing some work out at your house. What struck me the most throughout our conversation about you was: you have an amazing circle of friends who love and care about you very, very much! Let them be your strength while you fight this terrible disease. Your website is touching and inspirational to all...those with ALS and those without. You are in my thoughts...
 
Karen Cote 10/04/2006
Lewiston, Maine, US
HI Dave, I went to high school with Jenni, she was a year behind me. I have never known Jenni closely, but we have always taken the time to stop in passing and share pleasantries or challenges about our lives and family with one another. When I saw her in Walmart with Madison several weeks ago, she asked me if I had heard about the challenge her family was facing. I had not. Even though my husband, Roland Cote, had heard, he had unintentionally forgotten to tell me. I was so shocked. After overcoming Jenni's medical challenges, I just could not believe that this had been handed to your family as well. It really hit home for me, though. I can relate to your challenges and pain, even though I have not had to personally deal with them. My dad's best friend, Steve, has survived ALS for 12 years now. I was so excited to share this information with Jenni. I want you to know that there are people out there that have been fighting this, just as you are. Just last night, I asked my mother to give Steve your email and website. I am sure that he will contact you. He is an inspiration for others. Your love for life and your family will get you through each day. That is what I believe has made the difference for my dad's friend, Steve. Love, Karen Cote
 
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Erik 08/10/2006
boston, Ma, USA
Dave!!! Hope you are doing well. Folks at my work like the wristbands. I told them about the website and they were impressed. Keep up the good work. Hope to see you soon. - E
 
Jill 08/01/2006
Lewiston, Maine, USA
Hi Dave- Thinking about you! You and your family are in my thoughts and prayers. My Dad was recently diagnosed with this terrible disease. I'm still trying to learn more and this website helps out tremendously! Jill Pleau
 
Joe Salatino 07/13/2006
Auburn, ME
Hi David! Over the weekend I saw Jack, Phyllis and your mother Jackie, they all reminded me about your Birthday. Have a happy one! Joe
 
Jeanne Gaudette 07/13/2006
Boston, MA
Happy Birthday David!!!! I wanted to let you know that I'm thinking of you today on your special day and always!! Love, Jeanne
 
Erik 07/07/2006
Arlington, MA
Dave -- How are you? I hope you're doing well. Best wishes from the Boston area! - Erik
 
Raja Bose 06/13/2006
Ahmedabad, Gujarat, India
"April 5, 2005 I was officially diagnosed with ALS - Another date that I will never forget," -- That's one courageous statement. It doesn't bring tears to your eyes. For, David doesn't arouse sympathy. His life inspires, redfines courage and instils in all a zest for life. His example makes every other human being a much more courageous person. David, I salute you. You have taught me to live !
 
Annelies 06/12/2006
Basildon, Essex, UK
very informative site! i hope all goes well for David!
 
lena paradis 06/07/2006
East Poland, maine, usa
Hi Dave Glad I could help.
 
Francoise Gagne 06/07/2006
Lewiston, ME, Androscoggin
Just wanted to say," You all had done a great job on this website, and you also taught me never to give up. Thanks
 
Jeanne Gaudette 06/01/2006
Boston, MA
Hi David, I think of you and Jenn often and hope to see you sometime this summer. I wanted to let you know that I donated my car to ALS through an organization called Helping Hands of America. I hope the funds from the sale of my car and from this organization make progress in the search for a cure. xoxo Jeanne
 
Joe Salatino 05/25/2006
auburn, me, andro
Hi David! Glad to see your Basket Bingo was a great success! I was glad to see all your family and friends who were there to support you. It was a great turnout. Looking foward to your next function. Hang in there David and may God bless you. Sincerly your friend Joe
 
Cheryl Norcross 05/24/2006
Minot, Maine, Androscoggin
I worked for David's father Marc for for 5 years and I'm so sorry to hear about David. He is a very nice young man. I always have enjoyed speaking with him when he came into the office. I also know his mother & stephmother very nice ladies. I wish him all the best and I intend to send a donation to help. Thank you Cheryl
 
Wendy Simard 05/23/2006
Minot, Me, Andro.
Just wanted to let you know that the bingo on Sunday was amazing. Not only did it raise a lot of money but it also increased the knowledge of your web site. How awesome!!! You truely are a wonderful person and are doing a great thing for everyone. Your story is so touching. KEEP SMILING!!!!!
 
Nicole Lessard 05/23/2006
Fairfield, Maine, U.S.
I had a great time at the Basket Bingo Fundraiser!!
 
Crystal Belanger 05/23/2006
What your doing to help other families learn about ALS is amazing. I wish David and his family and friends well.
 
Diane Walker 05/22/2006
Buckfield, Maine
Hi David & Jen: I am a customer of Donna's. I have seen Jen at Donna's before. I went to the basket bingo yesterday. I am happy we were able to raise so much money for your cause. I just want to wish you the best and tell you that you are in my thoughts and prayers!
 
Stephanie Brushwein 05/22/2006
Auburn, Maine, USA
David I wish you and your family all the best, I am so glad I was apart of the basket bingo that was held yesterday for you and your family. Eventhough I have never met you our parents go way back. My parents were very close friends to Donna's parents and I believe knew your parents through that, ask your mom about Bobbi & Duane Bumps.(as you can see it's not an easy name to forget)Take care and you will be in my prayers.
 
Sonia Strout 05/22/2006
Lewiston, ME, USA
Dave, I had a great time at basket bingo yesterday, that is were i heard about this wonderful website. I work with a women who has ALS, as well as cancer, and I passed this site onto her, keep up the great work. My thoughts and prayers are with you and your family.
 
Jenny Moore 05/21/2006
Lewiston, Maine, Androscoggin
I just left the Basket Bingo, and the huge crowd was so supportive of your efforts to assist in research. God bless you.
 
Dick Moore 05/21/2006
Lewiston, Maine, Androscoggin
I wish David the best in his endeavors to assist in the research of possible cures to ALS.
 
Sandy Graul 05/21/2006
Greene, Maine
Dear Dave and Jen , I just got back from the Basket Bingo and what a good time!!! If there is ever anything that comes up and you need anything regarding Mad Dog I am sure Adam would love the company and so would we.After all we are only down the road and I wouldnt mind being asked anything from you guys.Adam talks about Mad Dog alot and that group of friends is fantastic!! Many Positive Thoughts and Prayers Going out to your family, Sandy,Adam,Don and Taylor Graul
 
Phyllis Morrissey 05/20/2006
Hi there,hoping we have a successful day tomorrow,BingoDay!!!!!!
 
Natalia 05/19/2006
Auburn, ME, Andro
Hi David! I am very impressed with all the support you are getting from your family, friends and especially you wife Jen during your difficult times. Jen puts her heart and soul in helping you in your fight with ALS. She completly dedicates herself to you. Together you and Jen face the difficult chalengeles that each day brings. We are looking forward to seeing you at basket-bingo on Sunday. Truly yous Natalia.
 
Joe Salatino 05/17/2006
Auburn, ME, Andro
Hi David! I am a friend of the Morrissey family for a long time. And through them I learned of your disease. I admire your courage and wish you all the best. I visited your vebsite and saw all the support from your family and friends. I was at the dance on Satuday and got a chance to visit with you and your family and a lot of your friends. It's was very nice to see all the support that you are getting. You have a careing and very lovely wife who stands by your side, a very careing brother Mike and your mother Jackie, who also stands by your side. They all love you very much. David! You are a very strong and courages person. DO NOT GIVE UP AND MAY GOD BLESS YOU!!! Sincerly yours Joe Salatino.
 
Jackie Lafayette 05/15/2006
Greene, Maine, Androscogin
To my two best men in the world! The two that give real meaning to "Mothers Day". the best part of who I am,you occupy all of my heart,and I love you more than life itself. You are my gifts,my miracles. "Proud" does'nt begin to describe all that you are,all that you've accomplished individually,and collectively as brothers. Without a doubt your dad is watching over you,ad I'm sure he continues to guide you with his strenght,courage,and love. Espescially to my daughter-in-law "Jen"! Your the best,you give your best,and "Thank You " for loving "David"!. Aheartfelt "Thank You" to each and every familiy members,and friends,co- workers,and the greatest boss "Scott Plummer". "Happy Mothers Day" to all mothers! Dave/Mike's Mom
 
Jackie Lafayette 05/15/2006
Greene, Maine, Androscogin
To my two best men in the world!
 
Roxann Jackson 05/13/2006
Lewiston, Maine, USA
Hey Dave, hope you remember me--Kelly told me about your website--which you did an incredible job doing!!! Your strength and dedication amaze me. I pray that you beat this--I would lilke to offer my support in helping with fundraisers, any events--I'm good at "hustling" some money out of people. Maybe we could get together and discuss a walk a thon to raise money. My email address is thru the hospital, my phone number is 783-7925 and work number is 795-2200. I am glad that you found someone as nice and loving as "Jeni"....God Bless you and let me know if I can do anything to help you--and I do mean ANYTHING!!!! Take care and God Bless you and your family. Sorry to hear about your dad--I'm sure he is watching and is very proud of you and your brother. ps in case you don't remember me-- i was friends with Jen Dick--married to Randy--devin and aj are my two boys....
 
Crowder 05/12/2006
LHS '85
LAFFY KICKS ASS
 
Anita & Paul 05/08/2006
Maine
Keep up the great work. You're very special.
 
Samantha Plummer 05/07/2006
Portland, Maine, USA
We are all pulling for you Dave!
 
Jennifer Fisher 05/07/2006
Virginia Beach, Virginia
Hey Dave I just heard about your website. Great site. My prayers are with you, Jenn and your family.
 
Erik Linnane 05/05/2006
Newton, MA, USA
Hey Dave, How are you doing? The website looks great and I see you have some great events coming up. Keep up the fantastic work! best, Erik
 
verne paradie sr. 04/27/2006
hartford, me.
hi dave hope your doing well.I can not believe the responses to this site,it is remarkable.Thanks for getting it out and making millions aware of this devastating,debilitating disease.we are definetly on the right track to wiping it out.
 
Joline Caron 04/26/2006
Greene, Me
I'm so glad I got this website. I heard about your illness last year from Sue (my sister) and knew nothing about ALS. I often think of you Dave wondering how your doing ,so this is great I will be able to educate myself from this website and read your updates . I met your wife today and she seems like a wonderful lady. I will keep you in my thoughts and prayers Dave. Joline Caron (Bouchard)
 
Louise 04/15/2006
You added a lot to the site since I last went on- looks great. Thanks for adding our picture. I donated $ in Dan's name for the walk he's doing next week. Jen, did you get a good quote for the addition? Love, Louise
 
The Negm Family 04/05/2006
lewiston, maine, usa
Dave, We are actually at a loss for words. Hard to believe that it has been 10 years since we last spoke but please know that you and your family are in our thoughts and prayers. With all that you have done, and continue to do, perhaps one day there will be a cure for this disease. In God, the Negm Family
 
Sandy (Landry) Carder 04/02/2006
Gray, Maine
I'm not sure Dave remembers me from high school, we all went on the trip to Florida together. I was floored when I found out about the diagnosis through a mutual friend. I already knew about ALS from listening to the journals of a local writer (Cape Elizabeth) read on NPR radio by her sister (she wrote about her experiences with ALS). It is a tragic disease so I was very upset for Dave. But then, I visited this site, this wonderful, positive site. I can see how very blessed Dave really is......my sister was diagnosed with a rare cancer & we have talked often about fate & life. There are many, many people in this world who are healthy and may live to be 100 years old, but they never truly live. They never experience true love or true friendship. I see that Dave has both of these things. Every day is a miracle. I wish you well, Dave. I send along all my positive thoughts (and those of others - Michelle (Tardif) Bosse & Sue (Roy) St.Hillaire. Keep up the fight !!
 
Elizabeth McMahon 03/26/2006
Jacksonville, Florida, USA
Dear Dave, I know that I have visited this website many times, and I have never responded in the guest book, but I am going to now. When you came into our lives and my sister Jeni's life, it was the best thing that has happened. I still till this day remember Jeni's first trip to Florida with my other sisters and my mom and how she would light up and giggle just your name being mentioned, we all sat around and talked about it, she swore up and down you two were just friends, but us knowing Jeni more than anyone, knew there was something more. Exspecially when you mailed the key to the box of goodies for her trip. Hee hee..that was a dead give away. You have helped her build her strength back and gave her the best gift that anyone could ever give someone and that was hope and laughter once again. She in return gave you the same, your love for one another would make anyone want to fall in love with someone. I love my sister Jeni, and I love you, having you as a brother in law has been an honor, and I truly mean that, I have so much fun being around you and my other brother in laws. On a different note you have found probably the strongest and loving woman to help you through this fight . You two were meant to be together, and I admire that. I love you so much, and I am coming up with some things down here. You are very strong, and as anyone can tell without knowing you, you are a wonderful man who has given his heart to so many people. I love both of you, and I will be there soon. Love, Liz
 
Lisa 03/22/2006
Minot, Me
Hey Dave, Everytime I check out your website I am more and more impressed, and proud of YOU! I still say and always will say "I can't even believe that there is such a disease (als)." How can something so awful!!!!!!!!! happen to such a WONDERFUL GUY!!!! I will always be proud to say you are my very BEST FRIEND! I still say if I had a huge wedding you would have been "my man of honor" I think alot of people thought we would get married. But that wasn't in the cards for us. We were meant to have such a special friendship that not alot of people will ever share. I love you so much and I absolutely can not believe that this is something that is actually really happening.You are such a HUGE inspiration to so many but, please remember you need to take care of yourself first and foremost! We (all!!! of your many friends!!!!!!!) are here and want!!! to help in every!! way possible so do not feel you are asking!! for our help WE WANT TO HELP! I love you so much and always will, your best friend, Lisa
 
Rita Melendy 03/12/2006
Hartford, Maine, USA
Dave, I can't tell you how impressed I am with your website. I would like to have all Maine pALS take the time to read all the fantastic information you have available here for them. I will make sure to sing your praises to all the pALS I meet. I would love to have you come to speak at one of our support group meetings. Others dealing with ALS could learn so much from you even though many have been fighting it longer than you have. They come to support others and walk away having been supported themselves. You could do so much for them. You are all so inspirational in so many different ways and I have found very few (in the six years that I have worked as the Patient Services Coordinator for ALS in Maine) who feel sorry for themselves - like you, they are too busy trying to learn more and trying to help others as you are doing with this website. Most of you are such inspirations for others with ALS as well as so very many people who are not fighting it, but are touched by you. Like so many, I too would have loved to have had you around to teach me as I was taking care of my boss - and we were learning about ALS together. He and I started the Maine Support Group in Augusta. He was the Clerk of the Maine House of Representatives and made the most of his fight. He managed to work up to three weeks before he died. Like you, he was also a very inspiring person and wanted to help others with their fight. I am no longer working as the Pt. Services Coordinator for ALSANNE. Instead, I am trying to volunteer my time in other aspects of trying to assist pALS in other ways. Right now, I am working on finding a way to reach out to people who have been diagnosed but have not yet found a support network. I want to be able to refer them to agencies out there who have some financial support for them and the information on how and where they can get the help. I have other issues I am working on as well. Thank you for sharing your story. You are a great person as is your wife. (I was so happy to have referred her to the Joe Mayo ALS Scholarship Fund and was thrilled when she was successful in getting a scholarship.) From the details of your story, you have a very special family and so many wonderful friends. They are fortunate indeed to have you in their lives. Thank you for touching mine - I hope I can get to meet you. Keep up your positive attitude. It is what makes each day count. Rita
 
Kim Karkos 03/09/2006
Greene, Maine, USA
My mother in law has been fighting ALS for the last 10 years. She is a very strong and courageous person who has taught her family that love endureth. Please contact me if you would like to discuss her case. Thanks, Kim
 
Caroline 03/08/2006
Auburn, Me., USA
I have ALS ,I lost my husben of cancer 9 years ago.My honey thought I had MS,I was in a wheelchair when he was sick ,so I put my check up after he was gone. My honey died in 1996 and I found out I had ALS 1997 after he left.The Dr's gave me 3 to 5 years back in 2004 ,I told them only one can tell me when it's time.I live one day at a time and I thank God I'm here for my chirldren & grandchirldren all 11 of them.When God is ready I'm ready it's okay. The Dr's now just shake there head,I tell them I'll see you next year. God Bless and never give up .Caroline Karkos
 
Dave Carlton 03/04/2006
Peabody , Ma, USA
Wonderful site. Not much one can say other than your courage is an inspiration to me. I don't need it now (thank God) but I am sure I wlll one day. Thank you. I will check in often. Best of Luck Dave.
 
Erik Linnane 03/03/2006
Arlington, MA
Dave, The site looks great! Keep up the good work. My family has been thinking about you and hope you're doing well. best, Erik
 
Melissa 03/03/2006
Biddeford, ME, United States
What a great website and an amazing story. On Mardi Gras I was given one of your bracelets and asked to come check out the site. I feel fortunate to have found out about this site. I have had known people close to myself and friends of my family that have gone through the battle personally of ALS. I think your strength and persererance is very honorable, and I have a great amount of respect for you as a person. I at this time am not able to make a donation due to financial health bills of my own due to another medical situation. However, if I can in any way ever help spread the word or help organize any benefit, walk, etc. please contact me. Take care and I will keep you and all people impacted by ALS in my prayers. Melissa
 
G Smith 03/02/2006
Maine, USA
Hi David, Please know that you are in my prayers. I pray you find comfort in knowing just how much God loves you. and that He is right there for you. God bless you and your family with His abundant love. Praying for you ...
 
Judith A Milbert 03/01/2006
Greene, Maine, USA
David, Our prayers are with you, With God`s Grace, Let there be a cure. Keep you head high, and look up..
 
Andrea Gauthier 02/28/2006
Minot, Maine, USA
Dave, I just wanted to let you know, you and Jen and your family are in our thoughts and prayers. You are an amazing man, your strength is inspirational and you are more special then words can express. We feel truly blessed to be a part of your lives. Always know we are here for all of you and we love you !!! Andrea, Robyn and Ashley Gauthier
 
Tim & Carrie Kivus 02/27/2006
Lewiston, Maine, USA
I finally got a chance to check out the web site. You are always in our thoughts and prayers. lots of love. Tim, Carrie, Molly and Samantha.
 
Nancy & Gary Rose 02/25/2006
Scarborough, Maine, USA
Hello David, I am Jeanne Gaudette's sister and have been following your story since the beginning when both Jeanne and Michael told me about your illness. I just wanted to write to let you know that I saw you on Channel 6 news and I can't describe how inspired you made me feel. I have the utt most respect for someone like you! Your attitude and words of encouragement to others proved that you are an outstanding individual with a loving and supportive family. It's wonderful to see that you are living your life to the fullest by going on the family cruise and continuing to work. I'm sure this is a difficult time for you and your family and I just wanted you to know that you and your family are in our thoughts and prayers..........Gary and I are sending a donation to you directly and will continue to donate to ALS research as a cure must be found! Love, Nancy and Gary Rose
 
Stacey Reynolds 02/25/2006
Windham, ME, USA
What a great site. You are an inspiration!
 
Susan Arbaugh Scherer 02/21/2006
Windham, Maine, USA
Such a brave and courageous man David is!! This disease must be wiped out!!
 
Peter Roane 02/20/2006
Sabattus, ME, USA
Hi, Nice site. Plan on visiting it often.
 
TODD ZUPANCIC 02/18/2006
GREENE, ME, USA
NEVER GIVE UP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!11
 
Patrick Bolduc 02/18/2006
Greene, ME, USA
I went to school with Mike. I think the last time I saw him was at Lewiston Junior High School. (Remember Mr. Gallway's English class?) I met David once or twice. He was "Mike's little brother". I'm sorry to hear of your situation. One of the "unfair" parts of life. My prayers are with you.
 
Pam (Bolduc) Chaput 02/17/2006
Lewiston, Maine
I haven't seen David since High School, I think. I'm terribly sorry to hear about your whole ordeal. Your story really hit me hard. It is great to see you have such great support! My prayers are with you Dave! Also with your family and friends. Never give up and keep fighting!! Find a cure. Take Care Pam (Bolduc) Chaput
 
Sue Harmuth 02/16/2006
Murphys, California, U.S.A.
Hello, My Mother(Josephine Ware, Jo) was diagnosed with ALS almost a year ago. She of course doesn't believe it, and is still drinking alcohol, and doing what she always does. Not much. As I watch her getting weaker, I am wondering what I can do. Like something that will lessen her falls. Or to help her with her sluring, and drouling. She goes to the Forbes Norris Clinic inSan Francisco. Murphys is 3hrs away. I guess I feel at a loss. Just watching her fade away. I am wondering if there others in this area with ALS. How do I find out. I wouldn't mind starting a support group. Thanks for listening. Sue Harmuth
 
Shirley Gaudette 02/11/2006
Pittsfield, MA, USA
I'm Jeanne's mother and we're are having a toast to you right now. You have put together a fantastic website - so keep up the wonderful work.
 
Jeanne Gaudette 02/11/2006
Boston, MA, USA
David, congratulations on your story on channel 6 news. You look very handsome on TV.
 
Eric Jones 02/09/2006
Virginia Beach, VA, USA
 
Karan McReynolds 02/09/2006
Hi David, Thanks for sharing your story on the Channel 6 News the other night. I had the privilege of hearing Jamie Heywood (from the ALSTDF) speak a few years ago at The Jackson Laboratory annual meeting. He talked about his brothers endeavor and his own resulting drive to make a difference. It was a powerful presentation. I am the principal of Ariel Creative who has partnered with The Jackson Laboratory for about 18 years telling their story through annual reports, capital campaigns and other fundraising initiatives. I spent a few minutes on your website and thought you may find an article of particular interest. Jackson Laboratory Team Designs a System for Detecting Early ALS Symptoms in Mice. They, too, are making strides towards learning more about this disease. Here¹s a link to the article on their website: http://jaxmice.jax.org/library/notes/499h.html. Our company specializes in helping with organizations who are working to improve human health ­ from Make-A-Wish of Maine to international organizations like the Lab. So it was great to see your story tonight as I am burning the midnight oil. Best regards to you, Karan
 
Sue Sydnor 02/09/2006
USA
Dear Dave, The other night after watching E.R. (did you see it?), I watched your story on Channel 6 news, then again today at noon. Despite my hearing the sad news of your diagnosis, I was thrilled to see such publicity of the disease, what you and your family and friends are doing to support research, and the hope and positive nature of your story. My father was diagnosed with ALS in 2000, after about a year and a half of bulbar onset symptoms. The disease has continued to progress slowly with him, giving us a chance to do research on drug trials, attend some informational and support-oriented conferences and meetings, and to move on with hope. I have since joined the Board of Directors of the Northern New England Chapter of the ALS Association. My folks live in Dayton, Maine, and they attend a monthly support group meeting in Augusta (there is also one in Portland and Bangor) put on by ALSA. Its clear through your web site that you have researched the ALSA site, and you may even be attending some of the same meetings as my parents. If not, and you or your family members think you might want to check out a casual and positive group of people with similar struggles and hopes, do check out one of the Maine support group meetings. You can find more info at ALSANNE.org, or I am happy to pass along specifics. Thanks again for sharing your story, for your and your familys continued bravery and hope, and I wish you well. Sincerely, Sue Sydnor
 
LESLIE DOUGLAS 02/09/2006
 
margaret hollon 02/09/2006
 
Mike Urban 02/09/2006
Fairmont, Minnesota, USA
David & family: May God bless you and send his angels of love and strength as guides through your journey. Please know you are not alone on the sea. Grab the strength and love your loved ones throw you. And keep in mind, smiles are like canoes. They always work better when the ends are pointing up.
 
Kasey 02/08/2006
Miamisburg, OH, United States
I am thinking about you in your time of need and hope for the best.
 
Lorraine Muntwyler 02/08/2006
Dayton, ohio, Montgomery
My prayers are with you and your familiy and all families with this disease.
 
Cathy 02/08/2006
 
Michele Kreitzer 02/08/2006
Dayton, Ohio, USA
Good Luck to you, You are in my prayers
 
kevin broermann 02/08/2006
Maineville, oh, usa
 
Lisa Wilson 02/08/2006
 
Lisa 02/08/2006
Rome, Maine, USA
Hi Dave, Matt & Patty are my brother & sister in laws. I know they love you dearly. ALS touched me personally a few years back when I was working as a racehorse trainer. Our long time, beloved Veterinarian, Jim Burns got the disease. We made a donation at the time of his death toward research, & will now again make a donation to this very worthy cause. I want to thank you on behalf of my old friend, Jim Burns- he would be sooo pleased with all the work you are doing & raising awareness!!!Best of Wishes, Lisa Wilson
 
Gladys Dick 02/08/2006
Lewiston, Maine
David and family, I think that what you are doing is the bravest thing. I feel that you are and will always be a part of my family. What you are doing to help other families is so great. All my love goes out to you. Nana Dick
 
Kris Hullinger 02/08/2006
 
Sonja Bussiere 02/07/2006
Auburn, Maine, USA
Dave, I am so impressed that you are putting your whole life out there for the world to see and gain inspiration from. I truely believe that we are all here for a reason and as horrific as this is for you , I hope that with all that you are putting into this that people will learn from you! Keep the faith and know that you are doing a great thing with this web site! I know that I am inspired just knowing you! hugs & kisses, Sonja
 
DAN MCMAHON 02/07/2006
WOBURN, MA, USA
I AM CURRENTLY LIVING IN NEBRASKA WITH MY WIFE LUCILLE. LUCILLE IS JENS STEP MOM . DAVID I AM PROUD OF YOU FOR THE FIGHT THAT YOU ARE GIVING THIS DISEASE. YOU ARE ALSO GIVING OF YOURSELF TO OTHERS UNSELFISHLY. I AM PROUD TO HAVE YOU AS A SON-IN-LAW. YOU ARE CONSTANLY IN MY PRAYERS.I WILL BE SO GLAD WHEN I RETIRE AND GET BACK TO MAINE SO I CAN BE WITH YOU MORE OFTEN.
 
verne paradie sr. 02/07/2006
hartford, maine
I dont know if you have received my e-mails,but i wanted you to know how impressed i am wih your site.I also have been inflicted with this terrible disease and like yourself i am very positive about destroying it so no one else will have to deal with it.I would like to help in any way possible.Feel free to contact me any time.
 
Jenessa Locke 02/07/2006
 
Doug & Karen Voisine 02/07/2006
Turner, Maine, usa
Dave, great show and interview. You are truly helping others (over 7,000 hits on the web site), wow. Keep fighting. The whole family loves ya. Love, Doug, Karen, Travys, Amanda, Saydi, Phoebe, Owen & Izzo :-)
 
Jim 02/07/2006
Poland, Maine, USA
Dave, You have always been a leader in all that you have done in your life and this chapter is no different. Not only are you working to help yourself, but unselfishly helping others. Your an inspiration to us all.
 
matt&patty delisle 02/07/2006
belgrade lakes, maine, kennebec
Dave, ALS will never take away your power and strength to move others. You continue to inspire us. Thank you for being the man you are. Matt & Patty
 
Lorie H Jones 02/06/2006
Kettering, Ohio
I dont know what to say. Dave, of course my heart goes out to you and all your struggles. If there is ever anything that I can do. If your travels ever bring you this way of course you have a place to stay. Jen, your family has been in my heart for almost as far back as I remember. I guess 20 plus years. Your whole family will be in my prayers every day. And, if there is ever anything more that I can offer please let me know. All my Love, Lorie Jones
 
Erik Linnane 02/06/2006
Arlington, MA
Dave, Have not seen you since the Harvest Fest. I was out at the Warren Tavern with Mike last night, and he said you are doing well. The website is great! Keep up the good work! best, Erik
 
Jon Pinette 02/06/2006
Portland , ME, USA
Dave, I admire your commitment to helping others.
 
Janet Macomber 02/06/2006
New Gloucester, ME, 04260
 
Catherine Cote 02/06/2006
Lawrence, Kansas
Dave, I admire what you have brought to many individuals attention about ALS. You are helping so many people by providing a wealth of information on your website about relevant research and various treatments. You are an inspiration to me and many others. Love, Catherine
 
Alan and Rachel 02/05/2006
David, We have just finished creating a link from our website to yours. We hope it will bring you a little traffic, a lot of donations, and many good wishes. Our best to you and your family.
 
Wendy Brennan 02/05/2006
mt vernon, me, usa
My mom passed of als in 1999. It ravaged her quickly. Diagnosed in june.Dead in sept. Thank you for being an inspiration.When my mom was diagnosed i had never heard of als.all info i found was saddaning.People w als need people like you god bless
 
Gard Scanlon 02/05/2006
Lewiston, Maine, United States
I saw you on channel six. That was very hard hitting ,I wish you all the luck in the world, you and your fanily deserve it.
 
Brian 02/03/2006
Plainville, Ma
Terrific site. I saw your brother Mike in Boston Wednesday night. The journal was very informative. It shows just how important it is to have a determined attitude and what it means to have a great support system. Thanks for sharing and my thoughts are with you and your family. Brian
 
James Woods 02/03/2006
Beverly Hills, CA, USA

James Woods


Dear David, Thank you for your lovely note. i did put my "heart and soul" into the recent episode of ER (entitled "Body and Soul"). As fulfilling as the artistic experience may have been, the greater joy by far was meeting brave people like yourself who clearly choose to live in the face of such a momentous challenge. Your courage and the courage of others like you inspire me and others who are blessed to meet or know you to live our lives to the fullest. If I have in any way contributed to a better understanding of this horrible disease, I am glad to have been of service. I wish you good health, Sir, and I hope for and believe in miracles. All the best wishes, James Woods
 
Kris 02/03/2006
Hi, Thanks so much for putting this site together. My Mom died of ALS in 1999. She was 79. It was an amazing process for myself, five siblings and our Dad. I wish so much we had had a site like this to refer to back then. It does help even now though. Thank you. Good luck with all of your efforts. Thanks so much. Kris
 
Stan Hill 02/03/2006
 
verne paradie sr 02/03/2006
hartford, maine, usa
I read daves story,and it hit close to home.Ive had this disease for about 14 years.I have had every test available to figure it out,with no great luck.My nuerologist in boston has finally diagnosed me with "A-TYPICAL" ALS.I am very interested in any new info,and would be happy to help any way i can.Please feel free to contact me at vparadie@yahoo.com. THANK YOU VERNE PARADIE SR.
 
paula 02/03/2006
maine