ALS Links - survivingALS.com

The Robert Packard Center for ALS Research is the only one of its kind dedicated solely to the disease. Although the Center operates within the Johns Hopkins Hospital at the Medical School's East Baltimore campus, its scope is international.

The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases - research, patient and community services, public education, and advocacy - in providing help and hope to those facing the disease. The mission of The ALS Association (ALSA) is to find a cure for and improve living with amyotrophic lateral sclerosis.

The Les Turner ALS Foundation is the only independent publicly supported non-profit organization in the Chicago-area devoted solely to the treatment and elimination of amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig's disease. The Foundation is affiliated with Northwestern University's Feinberg School of Medicine, Community Health Charities of Illinois and the International Alliance of ALS/MND Associations.

Project A.L.S. is a not-for-profit organization dedicated to, finding a cure for A.L.S., finding an effective treatment for people living with A.L.S. and raising awareness about A.L.S. Since it's founding, in 1997, Project A.L.S. has raised over $17 million. Over 81% of the money we raise goes directly to funding for our historic research programs. Current cutting-edge projects include:

Gene Chip Discovery
Accelerated Drug Testing
Neural Stem Cell Replacement

Project A.L.S. has assembled a dream team of leading doctors and researchers from around the world who are committed to our goal of bringing swift and responsible science to the fight against ALS.

The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. MDA supports more research on neuromuscular diseases than any other private-sector organization in the world.

National Institute of Neurological Disorders and Strokes

The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for 50 years.

General ALS

Founded in 1887, the National Institutes of Health today is one of the world's foremost medical research centers, and the Federal focal point for medical research in the United States. The NIH, comprising 27 separate Institutes and Centers, is one of eight health agencies of the Public Health Service which, in turn, is part of the U.S. Department of Health and Human Services.

ALS TDF Forum Statement of Purpose The purpose of this forum is to exchange information about ALS, scientific advances in ALS, and treatments for ALS.

This web site was designed as an Internet portal for persons with ALS (PALS) and their caregivers (CALS). This compilation is intended to help bring together ALS related Internet sources to one site. Everything here has been compiled by searching the Internet on a regular basis and from reader's suggestions of sites to add.

ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.

International ALS Research

The International Alliance is the peak body for national organizations who support people living with ALS/MND. The Alliance has undertaken several initiatives, including publication of background documents, created two awards, and initiated bursaries to assist members to attend the International Alliance meeting and a Support Grant to support the formation of new Associations, or the establishment of recently formed Associations. This is an excellent resource for identifying associations from all over the world.

El apítulo Argentino de Lucha contra las Enfermedades de la Motoneurona (C.A.L.Mo.) funciona en la sede de la Academia Socratica Argentina, Entidad de Bien Público sin fines de lucro, con personería jurídica otorgada en Febrero de 1981 y dedicada a la aplicación del conocimiento de sí mismo y al mejoramiento moral del individuo.

Motor Neurone Disease Association of Victoria (MNDAV)
MNDAV produces a range of information and resources to assist and inform people living with MND, carers, families, friends and health professionals.

Motor Neurone Disease Association of New South Wales (MNDANSW)
The Motor Neurone Disease Association of New South Wales Inc. is a registered charity and support organisation which, through specialised services, has worked with people with all types of motor neurone disease, their families and carers since 1981.

Motor Neurone Disease Association of Western Australia (MNDAWA)
The Motor Neurone Disease Association of Western Australia is a registered charity and support organisation. It is a member of the Motor Neurone Disease Association of Australia. We hope you find this site informative, and trust you will visit regularly to view the Diary, Updates and Newsletters.

Motor Neurone Disease Association of South Australia
This Web site will introduce you to:

the nature of motor neurone disease, its diagnosis and prognosis
the aims and membership of the Research Institute
the ways in which the Research Institute relates to other MND organisations
the way in which the Institute distributes its research funds
the ways in which the Institute raises funds for research

ALS - Liga Deze website is zodanig opgebouwd dat er voor iedereen informatie te vinden is, zowel voor de patiënten, hun omgeving, studenten, medici, sympathisanten, sponsors, enz. Het is onze betrachting om u via dit kanaal in eerste instantie van dienst te kunnen zijn en u bij te staan in de zoektocht die u onderneemt. Bij revalidatie vind je alle informatie die nuttig is bij uw specifieke symptomen. Mochten er na het lezen nog vragen bij u opkomen waar u geen antwoord op gevonden hebt, mag u te allen tijde contact met ons opnemen.

ALS Society of Canada
The ALS Society is committed to:

Support research towards a cure for ALS.
Support provincial ALS societies in their provision of quality care for persons living with ALS.
Build public awareness of ALS and its impact.

ALS Society of British Columbia
The mission of the ALS Society of BC is to find the cause of and a cure for Amyotrophic Lateral Sclerosis. We are also committed to providing support to ALS patients, their families, and caregivers.

ALS Society of Manitoba
It is our hope that this new website offers comprehensive information about ALS, about the ALS Society of Manitoba, information for people with ALS and their caregivers, health care professionals, donors, media, and the general public.

INFO-SLA of Quebec (not affiliated with the ALS Society of Canada)
Commencez votre visite ici. Sachez pourquoi ce site a été créé et quel en est sa mission.

The Finnish Neuromuscular Disorders Association

Association pour la Recherche sur la Sclérose Latérale Amyotrophique (ARS)
L'ARS (Association pour la Recherche sur la Sclérose latérale amyotrophique et autres maladies du motoneurone) a été fondée en 1985 par un petit groupe de personnes réunies par le même souci : lutter contre la maladie en réunissant les forces des patients, de leur famille et des membres du corps médical concernés. Cette étroite collaboration est la colonne vertébrale de l'Association et demeure sa marque essentielle. Elle compte 6500 adhérents et est présente sur l'ensemble du territoire par le biais de ses Antennes.

German Association for Muscle Diseases
Den Anstoß, die Gruß- und Weihnachtskarten-Aktion ins Leben zu rufen, gab das 1. SMArty-Symposium im Jahr 1999. Obwohl unser Sohn damals schon verstorben war, nahmen wir daran teil und erlebten eine beeindruckende 4tägige Veranstaltung mit einer Atmosphäre, die sich in Worten nicht beschreiben lässt. So entstand der Gedanke, die DGM weiter tatkräftig zu unterstützen.

Associazione Italiano Sclerosi Lateral Amiotrofia (AISLA)
L’A.I.S.L.A. è un’Associazione indipendente, fondata nel 1983 da un piccolo gruppo di persone che, frustrate dalla loro esperienza di isolamento e di abbandono ma piene di speranza e visione futura per migliorare la situazione di pazienti e familiari, si costituiscono in Associazione per poter contrastare l’incubo della Sclerosi Laterale Amiotrofica.

Japan Amyotrophic Lateral Sclerosis Association (JALSA)
JALSA

Dutch Neuromuscular Disease Association
Wellicht kent u de CD Before I'll be gone van Dennis Kouijzer. Misschien heeft u net als 3000 anderen de CD zelfs gekocht. U kunt nu met één muisklik de CD en spierziekten meer bekendheid geven.

Motor Neurone Disease Association of New Zealand

Scottish Motor Neurone Disease Association
The Scottish Motor Neurone Disease Association has existed for 24 years. Serving an MND community - people affected by MND, carers, families and health and social care professionals. We provide specialist care, information and fund research to ultimately improve the quality of life of people affected by MND. Our fundraisers and branch members have and continue to be our main source of funding and support.

Asociación Española de Esclerosis Lateral Amiotrofica (ELA)
Adela Vasconavarra es el sitio web que comparten las asociaciones de ELA de Euskalherria y Navarra, asociaciones sin ánimo de lucro, cuyo objetivo principal es trabajar para mejorar la calidad de vida de los enfermos de ELA y sus familiares, siendo un grupo de presión de cara a lograr para cada enfermo y para el colectivo las mejores atenciones médicas, económicas y sociales que nos sea posible.

Motor Neurone Disease Association - England, Wales and Northern Ireland
The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.